Annual Conference 2000 |
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With over 75 members attending this was our biggest Conference so far. There were members from Scotland, Ireland and even California!
The agenda included three excellent speakers covering clinical, genetic and research aspects of FSH-MD. Dr Hilton-Jones, (MDC Muscle Centre), Oxford, spoke on the Clinical Aspects of FSH, followed by Dr Linda Tyfield, Southmead Hospital, Bristol describing, in an understandable and entertaining way, just how blood samples are processed in the laboratory to identify the chromosome changes that characterise the various MD's.
During the lunch break there was an opportunity to view a display of aids and equipment put on by Ashdale Healthcare of Oxford.
After lunch Dr.Peter Lunt, St. Michael's Hospital, Bristol spoke on the international effort in Molecular Research into FSH-MD.
All the speakers answered questions raised by their talks but, in addition, support group members had been invited to send in questions in advance of the conference. All of these wide ranging, questions were handled jointly and expertly by Drs Hilton-Jones and Lunt in a separate session.
During the afternoon there was an excellent workshop session designed for partners, parents and carers of members. This was run by Judy Abbot (Carers Centre, Banbury) and Jane Stein (FCO MDC Muscle Centre, Oxford) and proved very successful.
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The Speakers at our 2000 Conference from left to right:
Dr.David Hilton-Jones - MDC Muscle Centre, Oxford
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