Links To Other Sites

You can find some very helpful and useful information on the sites listed below.
Please let us know of any other interesting sites you find.

 


The FSH Society

NSF for
long term
neurological
conditions

UC Davis School
of Medicine

French FSH Site

AFM - French MD
Association

Bath Disability

MD Campaign

MD Ireland

MD Association
Australia

MD Association
Canada

Neuromuscular
Disease Center
Washington
University

Neuropathy
Association

MD Association
USA

"What Happens to
someone
with FSHD?"

UK Self Help
Resources

Disabled Living
Foundation

National Electronic
Library for Health
called GenePool

Adapt-IT
computer aids
for disabled people

Institute
of Myology

European
Neuromuscular
Centre

American Journal
of Human Genetics

Genetic Interest
Group supporting
those affected by
genetic disorders

FSH United

Expert Patients
Programme

Pacific Northwest
Friends of
FSH Research

Your Level Best

Disability Rights
Commission

Disability
Discrimination Act

Disabled Access
Holidays

Translational
Research
in Europe

University of Rochester
Fields Centre
for FSHD Research