MDC Statement on DLA
We are appalled that this decision has been announced as a cost cutting measure,
revealing the intention for the medical assessments to reduce the numbers of people
receiving this essential support. As a charity supporting people with muscle disease
we have particular concerns about these assessments because, as with many rare
illnesses, many medical staff do not have the expertise or knowledge of the condition
to make a fair assessment. Read more

MDC Launch Wheelchair Report
Health Minister Paul Burstow MP with campaigners, Baroness Thomas of Winchester
and Robert Meadowcroft. The Muscular Dystrophy Campaign today launched its hard-hitting new report, Get Moving - the case for effective Wheelchair Services, at an event in the Houses of Parliament hosted by All Party Parliamentary Group for Muscular Dystrophy Chair,
Dave Anderson MP, and attended by over 90 families, supporters, clinicians and
Parliamentarians from across the country. Read More

Newsletter: Summer Issue 15
Welcome to our special 25th anniversary edition. My thanks to Martin Fielden for taking on the
role of news editor. The last twelve months have been very busy for our group; we have had the Autumn Get together in Oxford which saw eighty five members in attendance, and the recent
“Mega Spring Get Together “held at the Holiday Inn, Haydock. This was our first full weekend venture but proved to be very popular with forty two members staying over for the whole weekend.... Click here to read more (PDF)

East Midlands Region 2nd "Meet and Eat"
Due to the success of their first meet and eat a second has been arranged for Saturday June 26th. I hope you are able to join us for this event. More info


Spring Mega Weekend
If you weren't there the chances are you may have thought "Spring Mega Weekend Get Together", that's setting the bar pretty high. However, I was there with my wife Gill and I can report that the imaginary bar was well and truly cleared. The whole weekend was excellent with a very varied programme, something for everyone really.........read more

South West Neuromuscular Network
Do you live in Isles of Scilly, Cornwall, Devon, Dorset, Somerset, Wiltshire, Gloucestershire, Bristol, Bath or North East Somerset? If so the new neuromuscular network set up by the South West NHS Specialised Commissioning Group could be of interest to you. pdf1, pdf2


Margot's Visit to Parliament
Support Group member Margot Keats, of Evans meets MPs and regional health bosses in Parliament to discuss local services for people with long-term muscle conditions. You can read Margot's interview in the following pdf's. BBC news , Derby news pt1, Derby News pt2

East Midlands Region "Meet and Eat"
Following the success of the West Midlands group, our next "Meet & Eat" will be held in Leicester on Saturday 10th April. I do hope you are able to join us for the first event for the East Midlands region, which with your support will hopefully be the first of many. booking form (PDF)

Latest Get Together Confirmed
We are pleased to invite you to our our lastest Get Together to be held over the weekend of the 14th, 15th and 16th May. Titled the "FSH-MD Mega Weekend" the event will also include our 25th anniversary dinner. For more information on the event and how to book, please download the booking/information pack (PDF)

Newsletter: Winter 2009 Issue 14
Welcome to the latest news letter. I'm very honoured to have been asked to be the new chiarperson for the group. I'm looking forward to meeting the challenge of increasing our membership and offering more support and information to everyone with FSH-MD and their families and friends. Click here to read more (PDF)

News Update: Bradford and Glasgow September 2009
The MDC annual conferences were held in Bradford and Glasgow this year, for the first time our group had a presence at both events. Our stand attracted a lot of interest especially our new banner, logo and display board. We were also pleased to introduce our latest member "FiSHer Bear" who.........Click here to read more (PDF)

Newsletter: Summer 2009 Issue 13
Summer is almost here at last. A lot has been happening with the FSH Group. We
had a very successful Spring Get Together Day in April which has given us some ideas for the future of our group. Other highlights include more stories from members and useful product reviews. Click here to read more (PDF)

Newsletter: December 2008 Issue 12
The first of our new look newsletters, including contributions from support group members. The hot topic of 'should we have our children tested' as well as advice on benefits and grants. Other highlights include members stories from Karen and Carol. Click here to read more (PDF)